OUR VOICE FOR RARE DISEASES

VARIOUS

28 February 2018 from 16:00 to 20:00

Centre des arts, La Grande Boissière

With the support of the Parent-Teacher Association (PTA).
 
Also dedicated to shedding light on global issues, the Centre des arts will once again host an evening of musical and theatrical performances to help raise awareness on the occasion of World Day for Rare Diseases.
 
With participation of artists of all ages, the evening will include:
  • 16:00-17:30 - Theatre
    La Grande Boissière Dance School and the Petits Loups du Pop will dance and sing together.
    Students from the Conservatoire Populaire de Musique, Danse et Théâtre will dance to the music of Philippe Jaroussky.
    The Nightingale Project and it's new creation "Canne en ville": When the visually impaired, blind and not visually impaired dance together to show their emotions.
  • 18:30-19:30 - Auditorium
    A tribute concert to their classmate Victoria and her family by the choirs of Les Marronniers and the Middle School

The United Nations music club and Navy Blue will provide a jazz interlude in the Centre des arts lobby from 17:30 to 18:30. Refreshments and appetizers will be served. 

All funds raised during the evening will go to support research on rare diseases - namely to the Cansearch Foundation "Can fight for Victoria" action group on acute myeloid leukemia (AML).

To volunteer for the event, don't hesitate to contact wairimu.schmale@gmail.com.

Launched in 2008 by EURORDIS-Rare Diseases Europe - a non-profit alliance of 761 rare disease patient organisations from 68 countries - Rare Disease Day collaborates with organisations globally in order to put on events, create media coverage, and ultimately raise awareness amongst the general public and policymakers about rare diseases and their impact on patients’ lives.